Generic Name: Zeposia (ozanimod)
Zeposia Reviews
For Multiple Sclerosis "Diagnosed with MS 17 years ago and never took any maintenance medication (solely my complete ignorance!) assuming a healthy diet, exercise, and vitamin D supplements were enough to keep me walking.... Failure! At year 15, I could barely walk to the end of the driveway without both of my legs collapsing. Zeposia saved me! I now can walk again 30 - 45 minutes up and down hills and in rough terrain (grass, rocks, and pebbles) not at first, but gradually over the last 2 years, I have accomplished this. Need to limit sun exposure for myself to 15-20 minutes max. After that, I start stumbling and tripping. Hot days, 90 degrees, okay as long as it's not sunny! I refinished my deck on an overcast dark 90-degree day, no problem. Felt compelled to share my story with others to give them hope! God bless us all."
For Ulcerative Colitis "I was on Zeposia for 2 months. Before that, I was on Entyvio for 8 months. Zeposia has so many serious drug interactions that made it much harder for me to manage my pain and other issues. On day 19 on Zeposia, I started having severe SI joint and lower back pain. I couldn't walk or even lay down without pain (I'm 32 years old). I also had episodes of high blood pressure twice within 2 months with a headache and vomiting. I had to stop taking it because it didn't work for my UC and had too many side effects, unfortunately."
For Multiple Sclerosis "I have been on Zeposia for a year. I was on Tysabri for ten years before. It was such a pain to get my IV every month. Now, I take a small pill every day and I have never felt better! I started having MS symptoms when I was a child. I truly can't remember ever feeling so healthy, so normal. I take other medicines, baclofen and all. But, I feel like a million bucks. It's not a cure but it sure does feel like it!"
For Multiple Sclerosis "My wife has been on Zeposia for 1.5 years after 5 years on Tecfidera. Switched because of better efficacy and MRI showed relapse. Downside-blood pressure went up. Upside-no relapses. Easy to get onto treatment. Tecfidera made her nauseous for 4 months. She never feels good enough to have a normal life like some write about here but MRI’s are clear. She’s a bit unsteady on her feet but walks well enough. Complains of vertigo sometimes. Still has pain daily in her legs."
For Ulcerative Colitis "I've been taking Zeposia for 9 months. It has changed my life. A wonder drug. I suffered with UC and my life was miserable. I have not been experiencing any of the side effects that some have mentioned. I take a daily pill. Can't say enough good things. I'm so grateful."
For Multiple Sclerosis "My partner used it for 6 years, through trial. No serious side effects, one flare up, but according to MRI there was progression, so went to ocrevus"
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Related treatment guides
- Multiple Sclerosis
- Ulcerative Colitis
