Generic Name: Zydelig ()
Zydelig Reviews
For Follicular Lymphoma "After 6-1/2 years (2/2011-9/2017) on Rituxan-based therapy, I became refractory to it. I took 6 months off from all treatment, then started on Zydelig (3/2018). After 2-1/2 months, I experienced increasingly painful stomach and intestinal cramps, then diarrhea which landed me in the local V.A. hospital (6/30/2018-7/15/2018) with 'ballistic diarrhea' and experienced several Atrial Fibrillation events. A month after discharge, I was diagnosed (8/2018) with Type 2 diabetes. In November 2018, I was diagnosed with Myelodysplastic Syndrome after a bone marrow biopsy, and am now monitored with monthly blood-draws and physical exams. [My follicular lymphoma is presumptive evidence of Agent Orange exposure in 1968 in the Mekong Delta, and that is why I pay -0- for my treatments, Rxs and medications.]"
For Follicular Lymphoma "When I had a relapse after other treatments I was able to join the research study for this drug. It does work for my follicular small cell lymphoma. I have been showing no signs of disease for 7+ years, however the side effects have not been fun. Intestinal cramping, diarrhea symptoms, skin rashes & itching, tiredness, paper thin skin with constant bruising & bleeding. There is also chance of developing auto immune system issues & intestine perforations. For that reason & fact maybe I don't currently need meds I'm stopping - but it did work. Took 2x 100 mg a day. To offset diarrhea I had Budesonide 1x day & Imodium 2x."
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- Chronic Lymphocytic Leukemia
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- Lymphoma
- Non-Hodgkin's Lymphoma
