Generic Name: Haegarda for Hereditary Angioedema ()
"I’ve been using Haegarda for about a year and a half and find it to be a very safe med with few incidental side effects (bruising at injection site, sometimes). It hurts a bit at injection, but much less than other sub Q HAE meds. Most importantly, it works better for me than any of the other preventative I’ve tried, and I’ve used them all (but Takhzyro,) including Danazol. That said, I believe the initial marketing claim about “95%” efficacy was a problem for patients because insurance companies can say that we should only be using rescue meds 5% of the time when on Haegarda. EEK! In my experience, I use rescue meds 7-9 times a month, down quite a bit from the time before Haegarda. I still have attacks, but the are less severe, mostly. I recently had a severe knee injury and my attacks became uglier while the injury was most acute. As HAE is inclined to do. Overall I like Haegarda and am not inclined to change preventatives any time soon."
Berinert, Cinryze
Berinert, Cinryze
