Generic Name: Kineret (anakinra)
Kineret Reviews
For Still's Disease "Yes, it does burn when you start to take it, and the spot injected might itch. I did a couple of things before taking the shot: 1. warmed it up for about 30 minutes, 2. applied ice to the spot I planned to inject, 3. would take a Benadryl to keep the itching down. I've been on it several years now. It burns or itches once in a blue moon. It has helped but doesn't keep the fevers and joint/muscle pain completely away anymore. Good luck! This medicine is definitely worth a try if you have AOSD."
For Rheumatoid Arthritis "Kineret gave me my life back. Within days, I was feeling back to my old self and free of pain. I'd tried everything under the sun including Methotrexate (pills and injections), Prednisone, Plaquenil, Sulfasalazine, Meloxicam, Enbrel, and then Humira. When I didn't respond to the biologics, my Rheumatologist told me there was nothing I could do besides a double wrist synovectomy. I fired him and got on a waitlist to see a new doctor. It took 8 months to get that appointment, but it was well worth it since one visit was all it took to get the prescription I needed. 11/10"
"I have been taking Kineret for over a year now. I have Adult Onset Still's disease and had Macrophage Activation Syndrome, which can be life-threatening. Kineret literally saved my life and has allowed me to stay off long-term steroid use. I haven’t noticed negative side effects with this drug either. Wish it wasn’t a daily injection, but it’s worth the pain/inconvenience!"
"I have Stills disease. I was terrified to give myself a daily injection but after a week or two I was a pro and it’s become so much easier. The medicine does sting and you can feel it go in which is an odd sensation, but letting it come to room temperature for 30 minutes helps a ton. I also wait a minute after using the alcohol prep pad to let the area dry before injection. I make sure to rotate injection sites and haven’t had any side effects or injection site reactions thankfully, just a little bit of light bruising sometimes in the injection site areas as I mainly inject in the stomach area."
For Schnitzler Syndrome "I've been on Kineret (anakinra) for several years for Schnitzler Syndrome. No other medication gave me relief, except high dose steroids, but I was pain and hives free within a couple of days of starting Kineret and back digging in the garden and walking kilometres when I had spent the previous 7 years mainly in bed. It was on the PBS list but now my hospital pays for it on my behalf. No injection site problems or side effects."
For Still's Disease "The drug works very well. What they don't tell you, though, is that it burns like a steroid each time, every time. So go into it forewarned as it's not anywhere in any literature and it's not something your physician will likely tell you beforehand."
"I’ve been injecting Anakinra for two years. It’s been life-changing for me as someone who has suffered for years with the inflammation, urticaria, fever, fatigue, and pain associated with Schnitzler's syndrome. In 24 hours, it cured my symptoms completely. I have had no issues with this drug, apart from some minor injection site irritation. It helps to warm up the syringe to body temperature prior to injection. I inject 100 mg daily into my stomach."
For Rheumatoid Arthritis "Realized/appreciated the effects after 2 months of daily injections. Very effective at reducing, if not eliminating, full body inflammation without steroids. Kineret’s on-track program made my prescription possible."
For Still's Disease "I've only been taking the 100mg shots for 8 days now. It does burn even after it has warmed up. I think this might be because it's thick and has to be injected slowly. But like they say.. no pain no gain."
For Schnitzler Syndrome "Kineret works great for my Schnitzler's Syndrome. It can hurt when injected but if I warm it up to room temperature by letting it sit out for a while or hold the syringe in my hand to warm it up, it hurts A LOT less."
More about Kineret (anakinra)
- Check interactions
- Compare alternatives
- Pricing & coupons
- Drug images
- Side effects
- Dosage information
- During pregnancy
- FDA approval history
- Drug class: antirheumatics
- Breastfeeding
- En español
Patient resources
- Kineret drug information
Professional resources
- Kineret prescribing information
- Anakinra (AHFS Monograph)
Related treatment guides
- Interleukin-1 Receptor Antagonist Deficiency
- COVID-19
- Cryopyrin-Associated Periodic Syndromes
- Rheumatoid Arthritis
