Generic Name: Upadacitinib for Ulcerative Colitis (upadacitinib)
Rinvoq (upadacitinib) "I am 64 and have suffered from ulcerative colitis/Crohn’s disease for many years. I was having entyvio infusions every six weeks for three years. It did help me a lot until it just quit. Daily bleeding pain and clots were back. My specialist put me on Rinvoq 28 days ago today. It stopped the bleeding etc., in 2-3 days!! My stools are completely normal and I have no urgency to get to the bathroom. I’ve been on 45 mg for 28 days. Tomorrow I start 30 mg. I’m so thankful for this medicine."
Rinvoq (upadacitinib) "I had been in remission for UC for 8 years when I had a recurrence. My GI doctor put me on Rinvoq starting with a high dosage and then stair-stepping down on the dosage. Within 4 days, I saw a significant improvement in my bowel movements and a significant reduction in bleeding. Over the next 6-8 weeks, I continued to progress and went back into complete remission. I have not been taking any medications for almost 10 months now after being treated with Rinvoq. I had no side effects except gaining weight back."
Rinvoq (upadacitinib) "I have been on this med for about a month now for Ulcerative Colitis. I am losing my vision, I am getting mouth sores, I am breaking out in my scalp, my face, my cleavage, the back of my neck and upper back/shoulder area. I am exhausted, and I am still having stomach issues. I have decided that I am DONE. I am hoping my vision will improve now that I am no longer going to take this. It’s such a terrifying feeling to be losing your vision at only 42 years old. It’s miserable too. I can’t read anything without a pair of readers in the Strongest prescription. My eyes ache and throb. I shouldn’t be driving either."
Rinvoq (upadacitinib) "I have had Ulcerative Colitis (UC) for over 10 years and have never had much success with any medications (have used Mesalamine, Humera, Imuran, Entivyo, Stelara, and Prednisone in the past). After a year-long severe flare with 3 hospital visits, I started taking 45 mg of Rinvoq and my symptoms improved after only two weeks of treatment. Within 2 months, I was having solid bowel movements with no urgency or blood. The only side effect is a low white blood cell count which caused an abdominal infection (handled out of the hospital with antibiotics). This drug has given me my life back!! I have more energy now and can eat foods like raw vegetables that used to knock me down with pain and bleeding. I started on 45 mg for 8 weeks and lowered the dosage to 30 mg. I had a small flare for about a month when the dose was lowered but after it improved. Make sure to get regular lab work done and get skin checks yearly by a dermatologist when taking this medicine."
Rinvoq (upadacitinib) "I have been taking Rinvoq for around 6 months, but I have decided to stop. Although I think it has helped with my Ulcerative Colitis and stopped the bleeding, it is not a suitable medication for everyone. As a 52-year-old man, I have experienced various side effects that have gotten worse over time, such as fatigue, stomach pain, intestinal blockages, and severe acne on my face, neck, and scalp. Additionally, the insurance process for this medication has been a hassle."
Rinvoq (upadacitinib) "Been on medication for 2 months and going on maintenance dose now. It has so far kept my UC under control after a 8 month flare up. However the last 3 weeks I have been suffering with dermatitis on my face, neck and chest. I’m struggling getting rid of it with topical treatment and don’t know if caused by Rinvoq. Also I feel like I have unexplained weight gain but not sure yet if caused by Rinvoq."
Rinvoq (upadacitinib) "This is an amazing drug that I have now used for about two years. My UC was so bad, I could not leave the house. I have tried all the others with no success, including Entyvio and Stelar. I have my life back! The only side effects are folliculitis on the scalp and possible weight gain. For me, it's a godsend. I'm on the maintenance dose of 30 mg."
Rinvoq (upadacitinib) "So far so good - It's keeping my UC in check after about 1 month of taking 3x/day. I will be dropping down to the maintenance dose after 2 months assuming all continues to go well. The only side effect has been some pretty noticeable fatigue from time to time."
Rinvoq (upadacitinib) "My body has been rejecting biological meds, so this is my first time trying this. I'm on 45mg. I'm having crazy side effects like throat dryness and skin itching and bubbling with open sores. But I will start maintenance dose in Dec, 30mg, and the doctor says side effects will ease up. First time in six years, body inflammation is almost zero. I hope this will work long term, like 20+ years for me."
Rinvoq (upadacitinib) "I have been suffering from colitis for the last 7 years. I have been using rinvoq last 2 months. It’s working well for me but I have had a large hair loss. Don't know if its because of Rinvoq. However, it looks like my life is back thanks to Rinvoq."
Rinvoq (upadacitinib) "I was given Rinvoq for treatment of my Ulcerative Colitis by my Gastroenterologist. Unfortunately, after only my 1st induction dose of 45 mg, I suffered an allergic reaction with the following symptoms: headache, constricted nasal passages, difficulty breathing, pain in my upper back, pain in my lungs, lungs felt like they were burning, lightheadedness, blurry/ fuzzy vision, numbness in my left arm, pain in my left arm, cold sweats, and pain in my abdomen. Ended in the ER and ER doctor said to stop taking this medication."
Rinvoq (upadacitinib) "I have had ulcerative colitis for forty plus years. I've been on steroids off and on, then had an infusion that did not work. So, I'm trying this. My situation is that they can't cut it out because it is the lower part. That would be a last resort."
Rinvoq (upadacitinib) "Medicine has brought me into remission. However, I have issues with cholesterol and my skin is extra sensitive. Hopefully, it will settle soon."
Rinvoq (upadacitinib) "I’ve been using Rinvoq for a month. I was on humira previously. Rinvoq has overall been the best prescription for my Ulcerative Colitis condition."
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