Generic Name: Vyvgart (efgartigimod-alfa)
Vyvgart Reviews
For Myasthenia Gravis "I have had 4 Vyvgart treatments. After the first treatment, the next day had no slurring, no drooping eye, and I could eat without food falling out of my mouth. Each treatment felt better. Been 7 weeks and starting to have issues with speech. It sure was great till now."
For Myasthenia Gravis "Over the last ten years of coping with this disease, I’ve had IVIG, prednisone, mestinon, rituxan, ultomiris, and Soliris. Most gave me some relief. After my second injection of Vyvgart, there was a noticeable difference in MG symptoms. After my fourth injection, I feel free of MG symptoms completely. I’m almost 3 weeks since my last injection and still doing great - speech, weakness, droopy eye, and breathing are great. I had mild headache and backache for a few days after the injection. I am now waiting to see how long it lasts me."
For Myasthenia Gravis "The first 2 cycles made the MG symptoms worse. one month after the second full cycle, I saw improvement and improvement has continued with each cycle. I believe I am as close to being in pre-MG condition as possible. I am currently on 4 weeks on, 8 weeks off, and could possibly have a longer off duration."
For Myasthenia Gravis "As of Tuesday, I received my third infusion. However, this is my first cycle. After the second infusion, I had an adverse effect. I usually experience droopy eyelids, but after the infusion, it totally shut my eye where I was unable to open it. After calling my neurologist, he had to prescribe 20mg of prednisone. This opened my eyelids back up to its normal droopy eyelids. As of today, I have not experienced improvement. I’m keeping hope alive that I will see improvement after I complete a full cycle."
For Myasthenia Gravis "I have been on Vyvanse since Feb 2023. I started with the IV treatment, and now I am getting the Hytruloo treatment. Both forms have helped me get my strength and life back to somewhat normal. I am only at, I would say, 80% of where I used to be before I got MG, but before this medicine, I was probably at 50%. I had problems with the IVs, it took an average of 3 sticks for my veins to hold, so getting the Hytruloo treatment was a blessing for me. Although this shot only lasts for 2 minutes, it does burn quite a bit. We have found that icing the injection site for about 20 minutes is very helpful and greatly reduces the burning pain."
For Myasthenia Gravis "First of all, I was diagnosed 30 years ago, and it took me 3 years to get the right diagnosis. Over all these years, I have tried many medications, but the only medication that made me feel like I never had MG is Vyvgart. I know it's not easy to be a slave to a medication because I'm going to be honest, nobody tells you that you are going to be on that treatment forever! Every 50 days, counting from the first dose, you only have like 15 days to rest and then start all over again. I have to say that I asked my doctor to change from the infusion to the injection, and in the meantime, it took about 3 months for approval. It didn't get approved, so I was without the medication for more than 3 months. Without Vyvgart medication, I noticed something very weird, and it was that I started to feel like I got this condition for the first time all over again. It was horrible! I appreciate Vyvgart because it really works for me, but I have to get it every 50 days, if not, I'm going downhill even with Mestinon and Cellcept."
For Myasthenia Gravis "Just finished my fourth infusion. This is my first series. On day three after my first infusion, all my facial muscles returned to normal. No more slurring and I could actually completely open both eyes, chew, and smile correctly lol. Every day gets better. I am getting stronger every day. My vision is much better. No more light sensitivity and no droopy eyelids. I feel very encouraged and very hopeful that I will continue to improve. We will now see how long it will last until my next infusion. I'm very satisfied. I am not 100%, but I would say I am 80% back to normal. I still have some weakness in my body but hopefully that will get better too. I dropped four points on my mg score. I do have to say, I was really bad. I ended up in the hospital in April in crisis so this infusion was very important to me. I never thought I would feel this good. I am very grateful for the medication. I would highly recommend it."
For Myasthenia Gravis "This Sunday will be my 8th Vyvgart infusion. I’m 4 weeks off, 4 weeks on (receiving it on Sundays). I jumped through so many hoops to get Vyvgart, that I had it in my head I would be up and moving immediately. But my shortness of breath when ambulating was becoming worse. However, thanks to the lab draws done at each treatment, it showed my hemoglobin being critically low. So relieved it wasn’t the myasthenia gravis. Once my hemoglobin returns to normal, I will follow up here with my Vyvgart progress."
For Myasthenia Gravis "I started Vyvanse on 10/02/2023 and so far, so good. No side effects, well tolerated."
For Myasthenia Gravis "On second cycle and see some steady improvement. Lost a little bit of taste, but my appetite is good. Balance has improved, and distance walking has picked up."
For Myasthenia Gravis "I have had three infusions so far, and my swallowing has improved almost back to normal, and my double vision disappeared. I'm very hopeful for the future. No side effects, at least not so far."
For Myasthenia Gravis "I won't know the full effects of Vyvgart until I have finally stopped the prednisone, but it looks good."
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