Generic Name: acetazolamide
Brand Name: Diamox Sequels oral
Suddenly in 2016 February at the age of my 33 one day morning my eye become red with tears. Ran to Hospital, Doctor told it was pink eye and he has given the medication for pink eye, there is no result and started become worsen. Lots of hospitals ran and finally known that it was Uveites and started Steroied Drops but not identified that even with the steroid also my vision was poor. Finally 2017 Dec bcoz of Steroid Drops I gone for the Cataroct Surgery, before surgery Doctor given Avastin Inj, it will work for no infection can come to me same time My IOP started increasing until 50. Doctor realized and started Diamox immediately. Now my Eye pressure is 20mm. Really Diamox worked. But strange, I feel I want to keep my eyes without any medication. Drops only tobe given not orally. God can help may be.
My story started in August 2011. I went to the eye doctor for a routine exam mainly wanting to get new glasses. At the appointment some of the questions the doctor was asking I thought was a little strange but it was things that was happening to me and I was just ignoring the symptoms. Losing my vision when bending over, dizziness, and headaches. I started with the tests MRI (which was normal) Lumbar Punture (36) and blind spots in my field vision tests. It was confirmed I had Pseudotumor Cerebri. My next mission was to find out, why did this happen to me? No doctor could tell me why so I started my own research. I'm a CPhT at a hospital so I had alot of info at my fingertips. I came across birth control and thought this could be a cause, since I had Mirena IUD inserted in October 2010. All the literature on Mirena does not say anything about Pseudotumor Cereri but Norplant does. They both have levonorgestrol as the active ingredient. So I took this to the many doctors I was seeing at the time. To my surprise no one wanted to hear what I was saying. When I found out this info I made the appointment to have Mirena removed! I am currently taking Diamox 1500 mg daily and it's been 5 months since having Mirena removed. Other than the side effects from the Diamox (tingling sensations,ringing ears,tired all the time) I am getting better. No one is going to tell me any different that Mirena was not the cause of Pseudotumor Cerebri.
My story started in August 2011. I went to the eye doctor for a routine exam mainly wanting to get new glasses. At the appointment some of the questions the doctor was asking I thought was a little strange but it was things that was happening to me and I was just ignoring the symptoms. Losing my vision when bending over, dizziness, and headaches. I started with the tests MRI (which was normal) Lumbar Punture (36) and blind spots in my field vision tests. It was confirmed I had Pseudotumor Cerebri. My next mission was to find out, why did this happen to me? No doctor could tell me why so I started my own research. I'm a CPhT at a hospital so I had alot of info at my fingertips. I came across birth control and thought this could be a cause, since I had Mirena IUD inserted in October 2010. All the literature on Mirena does not say anything about Pseudotumor Cereri but Norplant does. They both have levonorgestrol as the active ingredient. So I took this to the many doctors I was seeing at the time. To my surprise no one wanted to hear what I was saying. When I found out this info I made the appointment to have Mirena removed! I am currently taking Diamox 1500 mg daily and it's been 5 months since having Mirena removed. Other than the side effects from the Diamox (tingling sensations,ringing ears,tired all the time) I am getting better. No one is going to tell me any different that Mirena was not the cause of Pseudotumor Cerebri.
I have pseudo-tumor and have been on 500mg of Diamox two times a day for almost a year. I've shed a few pounds due to the fact that anything carbonated doesn't taste well and it's helped the excessive fluid levels I had. I did have a lot of nausea in the beginning but found it was due to low potassium levels so I took a supplement and all was better.
I was diagnosed with pseudotumor cerebri in 2002 and put on diamox right alway and then 2009 I was diagnosed with chiari malformation and at that time I was put on 1500mgs of diamox 2 times a day I still have alot of pain we tryed to reduce the mgs but that made the haedachs worst so we put the mgs back up the proable is I am having proables with my kidneys I am on other meds to and I have 3 shunts in so I can not blame it on this one med I just want you to know this med has been a life saver
My dr gaveit to me so I eat with out throwing up and it is working.
I TAKE DIAMOX SEQUELS 500MG TWICE A DAY FOR Pseudotumor Cerebri. BEFORE I WAS DIAGNOISED I SUFFERED TERRIBLE MIGRAINES THAT LAST FOR DYAS AT A TIME AND MY EYESIGHT WAS GOING DOWNHILL FAST; ONCE I STARTED TAKING THE MEDICATION THE MIGRAINES HAVE BEEN FEW AND FAR BETWEEN AND MY EYESIGHT IMPROVED. I HAVE BEEN ON THE MEDICATION FOR OVER 2 YEARS (SOON TO BE TAKING OFF THE MED.), I STILL HAVE TINGLING HANDS AND FEET FROM TIME TO TIME BUT I'LL TAKE THAT THAN THE MIGRAINES AND POOR EYESIGHT ANYTIME!!
I HAVE TAKEN THIS MEDICINE FOR A YEAR AND A HALF FOR SUDO TUMOR. FOR THE FIRST SIX TO EIGHT MONTHS IT WORKED GREAT. I HAD THE TYPICAL SIDE EFFECTS LIKE THE TINGLING IN HANDS AND FEET AND NO BEING ABLE TO DRINK CARBONATED DRINKS. BUT AFTER ABOUT EIGHT MONTHS IT GRADUALLY STOPPED WORKIN BRING BACK ALL OF MY SYMTOMS, VISION PROBLEMS HEADACHES, RING EARS, BUT I WAS VERY HAPPY TO HAVE IT WORK SO WELL AT FIRST. I GUESS IT JUST DOESN'T ALWAYS WORK FOR EVERYONE
I took this drug for pseudo tumor a few years ago. I'd had constant headaches for 4 months with no relief, and my vision was going downhill. After about 2 months on this drug all symptoms disappeared. The side effects though are HORRIBLE. Tingling in my hands and feet, and most annoying was the fact that any carbonated beverage had no sensation of carbonation (for lack of a better way to describe it). It was like drinking flat soda - you could "feel" the bubbles, but you couldn't "taste" them. Overall, I'm satisfied and would gladly take the drug again if needed (no soda is a small trade).
This medicine is making me function again! I have been on for a little over for 3 weeks. I had an opening pressure of 46 for a lumbar puncture and was diagnosed with psuedo tumor. Since I started taking this medicine, my vision has improved, my had does not feel like it's splitting in two. The only side effects are the tingling in my feet but I eat a banana and it goes right away. I also cannot drink soda but I don't need it anyway! Very Happy!
I've taken this medication the last 2 times we went skiing in Vail and was so pleased with the results! Because of altitude sickness, I was afraid I couldn't go to Vail anymore, but Diamox/acetazolamide really helped prevent the headaches, nausea and sleeplessness.
Given after cataract surgery 500mg SR, then proceeded to go into total renal failure.I am a cardiac patient, who has been on wafarin therapy for many years with no complications, until I was prescribed Diamox. I would question if this medication is really needed when used profalacticly to prevent increased eye pressure following uncomplicated cataract surgery!!!!!
i have psuedo tumor and the side affects are dreadfull. i take 500mg 3 times a day. I have constant nausea. the tinging went away after 4 months and my vision had been normal. im happy the way things are looking and i hope to be off the meds within the year
Overall I have had a few side effects that are chronic and difficult to deal with such as stomach upset, dry moth and continued pain.
I take this drug for psuedo tumor cerebri also. I started on generic acetazolamide which I had to take 4 times a day so the sequels are a joy in comparison, I get to sleep more than 6 hrs a night. I've regained all my eyesight and no more headaches, and that 'whoosh-pound' noise is gone. I've gotten used to the carbonation effect but I do miss my sense of taste. Ask your doctor if it's ok for you to take some vitamin D because that really seems to help me with the tics and tingling/numbness. I take a calcium plus D every night with my multi-vitamin, so it's not alot.
I used this medicine for a sudo tumor. The only thing I disliked about it was that it prevented me from consuming drinks with carbonation. But overall it worked well and sheads a few pounds.
I have Chiari Malformation and I have taken this drug for several years with much success. It helps to decrease the craineal pressure which causes much pain and other symptons.
i have pseudo tumor cerebri and have just started this medication. i am experiencing tingling of the hands mostly my left. other than that it seems fine but too soon to tell if it is working. i will post an update asap
