Generic Name: Oxbryta (voxelotor)
For Sickle Cell Anemia "My experience with this drug is only based on one month but I do feel that if I had continued on the medication I would have had a glorious turn around much less crisis but when the cost that I received was way higher than hoped I had to return back to hydroxyurea. So you can imagine my disappointment."
For Sickle Cell Anemia "It increased my hemoglobin and I have more energy. My platelets have reduced closer to normal. The only reaction I had was with my stomach, and that's a common reaction, but taking it alone (no other meds) with food resolved that. My insurance covers it with approval, and GBT (manufacturer) covers the rest, so I have no out-of-pocket cost. I appreciate the person who discovered this drug."
For Sickle Cell Anemia "Very very bad reaction to this medication. This medication broke my skin out in a horrible rash then hives then burned up 90% of my top layer of skin. Only after taking it for three days! I wish the would recall this medication and do more testing because I would hate for this to happen to more people with Sickle Cell Anemia. It’s been one month and my skin is still peeling and two different colors. This was the worse experience of my life!"
For Sickle Cell Anemia "Couldnt afford to stay on Oxbryta nor experience any side effects, positive or adverse. I REALLY hope a more generic or affordable price soon :( Based on this I cannot sincerely give a rating so I will give it a 2"
For Sickle Cell Anemia "My doctors have tried to get me approved for this medication but my insurance company won’t pay for it. Why have the drug if we can’t get it to help us?"
For Sickle Cell Anemia "Oxbryta definitely helped increase my Hemoglobin levels and decreased my bilirubin levels."
For Sickle Cell Anemia "I'm dreaming about this drug everyday because I just want to clear up my high bilirubin in blood."
